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Join OPEN Health at the Panel Webinar – Informing patient and caregiver decisions towards gene therapy, September 23, 2021.

This webinar will explore patient and caregiver experience and the key needs for ensuring truly informed decisions towards gene therapy, with a focus on the psychology of decision-making, the role of healthcare professionals, and how different groups can work together to deliver fully informed decision-making processes.


  • Ms Debra Miller – Founder & CEO, Cure Duchenne
  • Mr Luke Pembroke – Creative Director, Haemnet and Patient Advocate
  • Dr Stephen A. Kagan – Global Medical Lead, Gene Therapy Platform and Cross Portfolio, Pfizer Rare Disease
  • Dr Albert Freedman – Founder & Consulting Psychologist, Freedman Counselling Associates
  • Dr Declan O’Rourke – Consultant Paediatric Neurologist, Associate Clinical Professor UCD, and Associate Director of Research CHI


  • Gavin Jones – Global Advisor, Rare Disease, OPEN Healthproject.
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